What is heat sensitivity? Many people with MS find that their symptoms get worse in hot situations. This can be triggered by hot baths, the sun, or exercise. The effects of heat are temporary, but heat sensitivity can be extremely unpleasant. Plain and simple, I hate heat of any kind!! Ever since my diagnosis in ’91 heat has been one of my worst symptoms. That includes the sun, hot tubs, saunas, sweaters, warm clothes, hot showers and fevers from colds or flu. Humidity isn’t much fun for me, either. I can only take off so much clothing before becoming illegal. lol
Saturday, June 4, 2022
Sunday, April 3, 2022
Weight cycling, often known as yo-yo dieting, is a trend of losing and gaining weight. Yo-yo dieting is thought to contribute to long-term weight issues and an increased risk of obesity. Several research studies have been conducted to see if these worries were justified. Weight cycling and its association with obesity and diabetes were the subjects.
A total of 19 research studies looked into the impact of weight cycling on obesity-related metabolic risk factors. More than half of them (58 percent) discovered a link between weight cycling and increased weight and body fat, particularly belly fat, raising the risk of obesity.
Weight cycling appears to enhance the chance of future weight gain, according to three studies. The majority of studies that looked at the risk of type 2 diabetes reported that weight cycling did not affect blood sugar levels or the risk of type 2 diabetes (76 percent).
As a result though, the researchers came to the conclusion that there is insufficient data to indicate a link between yo-yo dieting and an increased risk of obesity.
I've been on a yo-yo diet since 1983! That's not a misprint either, it's been almost 40 years. I've gained and lost the same 20-30 pounds at least 10 times! I'm 64 now which makes losing weight more difficult. It's a fact that older people have a hard time losing weight. The reason for this is that we lose muscle mass as we age. Having less muscle means it's harder to use the calories you're eating.
In the old days, I watched my weight by exercising. I would simply put on my running shoes and take off running. If it was nasty outside I would ride an exercise bike for 30-60 minutes. When my MS took my standing, walking and my ability to run in 2011 I really started packing on the pounds.
Since high school, I always weighed 180-190. At a doctor's appointment in 2016, I weighed 200 pounds. Since I can't stand up because of my MS I didn't weigh myself until late 2018. When I finally stepped on a scale I was 250 pounds! I almost had a heart attack.
I immediately put myself on a 1,500 calories a day weight loss program. I got my sticky notes out and for two years I counted anything that went into my mouth. I ate and drank anything I wanted to including pizza, Cokes, cookies, candy bars, ice cream and chocolate cake but I always kept up my counting. In the end I lost 20 pounds with my calorie counting program which was good. When 2020 ended I was at 230 pounds.
However, as soon as I got back to 230 I quit counting cals and started eating more! Like a true weight cycler I gained 12 pounds back to 242. It was July of 2021 when I discovered The Smoothie Diet online. I started the Smoothies, watching what I ate and riding my exercise bike. I ended up losing 32 pounds by February of 2022. More importantly, The Smoothie Diet has helped me get my weight under control.
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I still have 20 pounds to go to get to my goal of 190 pounds but I'll get there! Try it out... The Smoothie Diet. The smoothies taste GREAT and now you can save $10 when you join.
Wednesday, October 13, 2021
My First Multiple Sclerosis Symptom
After much thinking and remembering, the first if not the very first symptom of my MS was intolerance to heat. This would have been around 1972 or '73. I would have been 14 or 15 years old. Of course, at the time I didn't know it was a symptom of MS. I would be in the backyard playing ball or mowing the grass. I always thought our backyard was really hot so I'd be sweating which is normal. When I went back in I would head down to the basement where it was very cool. This was 48 years ago but I can still remember my walking would be unsteady and my skin felt like it was crawling. At this time we didn't have air conditioning and I'd have the strange feelings for an hour or until I cooled off.
As a teenager, I practiced or played baseball in our backyard every day in the summertime. We had a round picnic table in our backyard that the family didn't use very much. One day I got the idea to tip the table on its side and throw a tennis ball at it. To my surprise, the ball came back to me in the air! I caught the tennis ball and threw it a second time. Again, it came right back to me. It seemed when the picnic table was on its side it was angled just enough to return balls to the thrower waist to chest high! I was happy because I could play catch with myself if no one else was around.
The bottom 1/3 of our house in the backyard was cement. I got the idea to throw the tennis ball against the bottom 1/3 of our house. The bottom 1/3 was cement blocks. I'd throw the ball lower and it would come back to me on the ground like a ground ball to an infielder in baseball. On hot summer days, I might spend 1/2 hour to an hour throwing tennis balls against the cement block and the picnic table. I'd come in sweating like pig and having those same funny feelings as in paragraph one.
Tuesday, April 24, 2018
I write articles about my life and my disease which is multiple sclerosis. I used to put them on different e-zines on the internet. I stopped writing about 5 years ago. I had some disappointments in my life and I just didn't feel like sharing my life anymore with other people.
I was diagnosed in July of 1991. Now that I know the symptoms of MS I can date it back to at least 1976. In hindsight, in '76 I might have had symptoms of MS but I knew nothing about the disease. Who would think they had Multiple Sclerosis because you were urinating a lot and didn't like heat situations. I wasn't dying so you just blow those things off. I think a doctor might call you a hypochondriac!
Now I didn't know anything about diabetes but I'd heard or read that people with diabetes urinate a lot. It's difficult to determine if my urination problems that week at junior college were MS or something else? Looking back, I think it probably was an early sign of MS but I didn't know MS from brain surgery. I was enjoying my new life as a college man. Now that I know what I know it could have been an exacerbation that lasted just one week.
Friday, April 20, 2018
In spring 2015 I went in to see my urologist for a checkup of all the parts connected to urinating. The doctor ordered a cat scan of my abdomen and areas related to urinating. When the cat scan came back it showed a small growth in my right kidney. It was only two centimeters long. We decided to keep an eye on it to see if it grew any. Many times these growths don't need attention but you need and want to keep your eye on them.
We checked it 6 months later in the fall of 2015 and there was no change in the size of it so we left it alone. I went back to my urologist in the spring of 2016 for catheter troubles. We decided at that time to do another cat scan on my kidneys. This time the cat scan showed minimal growth but my wife and I decided to have the growth removed anyway. I'd never had a surgery of any kind in my 58 years. I'd always been fairly healthy. So this was going to be a new experience for me. The next week my wife Doris and I met the surgeon and he went over the options that could be done to get rid of the growth. We chose a procedure called Cryotherapy.
ComplicationsThis is my definition of Cryotherapy and I'm no doctor. It is a procedure where growths are frozen. Then the growths shrink and eventually the growth goes away! During the surgery my surgeon took a small sample of tissue from the growth to check for cancer. My growth came out pre-cancerous so it could have grown into something more major.
After checking in which took an hour I went in for the surgery. I was laid on a gurney and had two nurses and an anesthetist prepping me. I'd never had a surgery before. The anesthetist put a mask on me and said take a couple of breaths which I did. That's the last thing I remember until the nurse woke me up. I'm assuming the surgeon came in next wielding his laparascope. Once inside me he froze the small growth. The actual surgery only took 45 minutes to an hour. When the surgeon finished I had 4 tiny holes by my right shoulder where the surgeon went in with his laparascope. I wish I could be more detailed but I was gassed. I stayed overnight at the hospital and was watched closely by nurses.
After one month I went in for another cat scan to check on the growth. It was smaller. Six months later I had another scan and again it was smaller. Then this past week another cat scan was done which was one year after the surgery. The growth is still shrinking. The growth is still in my liver but it's getting smaller. I was able to see the cat scans and my little growth. I'll do another cat scan in a year to make sure the growth continues to shrink or is completely gone. Anyway, that was my good news and I'm happy!!
Scooterjon - Christmas 2015
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Wednesday, April 18, 2018
According to the National Multiple Sclerosis Society, 80% of people with MS have fatigue. MS-related fatigue tends to get worse as the day goes on, is often aggravated by heat and humidity and comes on more easily and suddenly than normal fatigue.
Medically speaking, fatigue is not the same thing as tiredness. Tiredness happens to everyone -- it is an expected feeling after certain activities or at the end of the day. Usually, you know why you are tired and a good night's sleep solves the problem.
What's the best way to fight MS related Fatigue?
The best way to combat fatigue related to your MS is to treat the underlying medical cause. Unfortunately, the exact cause of MS-related fatigue is often unknown, or there may be multiple causes. However, there are steps you can take that may help to control fatigue. Here are some tips:
- Avoid exercise on hot and humid days, and never exercise to the point of fatigue.
- Use air conditioning. If hot and humid conditions worsen your MS try to stay in cool and dry areas as much as possible. A home air conditioner may be tax-deductible for some people with MS so talk to your doctor about that. Some people use a cooling vest on extremely warm days.
** ABOVE INFORMATION FROM THE NATIONAL MS SOCIETY WEBSITE